Annex 1 Interview Guide - Patients undergoing treatment for TB. However, participants were all at different timepoints and disease stages from diagnosis of advanced cancer, and hence their data important whenever it was collected. We also have to stay in a guesthouse. Barriers appeared to be magnified for ethnic minorities and patients coming from rural areas, especially those with MDR-TB. (DOCX 12 kb), Annex 2 Interview Guide - Health Professionals involved in treatment for TB. I'm not an Internet person really. For more information about PLOS Subject Areas, click Strategies include being realistic, indulgence, support, and learning from others, which enabled participants to regain a sense of wellbeing after emotional challenge. 2015;3(4):e217–28. Interviews varied in duration between 40 min to 3 hours (an hour and half on average), while FGDs lasted approximately one hour. Our daughter has given us 1000 Yuan (157 USD) […]. Perception, Resiliency and Coping Strategies of Filipinos amidst Disasters 3 METHODOLOGY The research is designed as a descriptive case study. Found inside – Page 37Early qualitative studies exploring high performance athletes' coping strategies ... additional research which suggested that athletes' coping strategy use ... Why and when do they perceive these coping strategies as effective? […] So when my sisters complain about it, I respond, “I will just wait till my daughter is married. e0169071. I’ve had loads of extra drugs to take for each side effect [and] learnt that if you need them take them and don’t be silly about things. This study was guided by four research questions: The study used a longitudinal qualitative design: serial qualitative interviews[33] were conducted both with people with advanced cancer and their family or other informal carers. Springer Nature. Qualitative data is not publically available to maintain confidentiality but can be shared by the corresponding author on reasonable request. Correspondence to Within the broad theme of ‘everyday pragmatism’ three interlinked strategies were identified: being realistic, changing priorities, and a focus on the everyday. Wei X, Zou G, Zhang H, Li R, Walley JD, Jiang S, Yin J, Jin S, Li Y, Sun Q, Newell JN, Griffiths S, Wang L. Evaluating the impact of decentralising tuberculosis microscopy services to rural township hospitals in gansu province, china. Attempts were made to overcome these issues by interviewing patients from rural settings that had arrived at the (urban) specialist health centres; this provided insights into those who have succeeded, to varying degrees, in accessing services in Kunming despite potential barriers, and provides important insights into the factors necessary for other patients to do so. This study provides further insights into factors driving the higher TB burden and slower declines in prevalence in rural compared to urban areas in China [24]. The ability to cope with living with advanced cancer as a patient or family carer fluctuates, with individuals combining perceptions of illness, responses to life events and inherent psychological traits to identify, develop and use effective coping strategies: …I don’t do low. These financial barriers may be exacerbated for vulnerable population subgroups [36], including the less-educated, the elderly, ethnic minorities, farmers, migrant workers [20, 37, 38], those with co-morbidities such as diabetes [39, 40] and as well as varying with gender [41–45]. The interviewer was a male native English speaker, while the interpreter was a female native Mandarin speaker. Second, self-coping styles included psychological and life adjustment, altruistic acts, team support, and rational cognition. CH, MK, XL and RJC made substantial contributions to the conception and design of the study; CH and XL managed acquisition of data; CH, MK, JY and XL all contributed to the analysis and commenting on the data. No, I haven't looked on the Internet or nothing, because somebody said to me it's the worst thing you can do, you'll find out things that you don't want to find out. Found inside – Page 37Developments in Theory and Research Daniel Gucciardi, Sandy Gordon ... mental toughness scores were associated with more problem-focused coping strategies, ... Gender difference in knowledge of tuberculosis and associated health-care seeking behaviors: a cross-sectional study in a rural area of China. This study explores the difficult times experienced by Chinese students in a PBL setting at a Danish University. Defining Catastrophic Costs and Comparing Their Importance for Adverse Tuberculosis Outcome with Multi-Drug Resistance: A Prospective Cohort Study, Peru. Financial constraints were identified by TB and MDR-TB patients and health care professionals as the most pervasive barrier to care. The successful application Notably, some healthcare providers themselves reported making financial and other contributions to assist patients, but recognised these practices as unsustainable. Found insideThe child who is a victim of sexual abuse is inherently powerless; therefore, particular attention must be paid to a reexamination of coping strategies with ... Regular monitoring of the study population focused on ensuring that potential participants were invited to participate from a range of tumour groups, with variability in age and gender where appropriate. Rural residents, farmers and ethnic minorities were the most vulnerable to these barriers, and patients with MDR-TB reported a higher financial burden owing to the centralisation and longer duration of treatment. Family carers also spoke of the enabling features of both sharing the practical burden of caring and how this relieved their own concerns when such support was offered by those who were trusted: I’m very grateful that she’s got a good circle of friends… I know full well if my mother says she’s going out with friend A from church then I’m quite happy with that… I can go and do something and not worry about how she is, where she is or is she planning on coming home this afternoon or is she getting the bus back. 2008;17(12):1393–412. Found insideThis book has assembled an array of chapters on the medical, social and economic aspects of HIV/AIDS. The chapters were written by experts from around the globe reflecting the importance of the topic. Ayé R, Wyss K, Abdualimova H, Saidaliev S. Factors determining household expenditure for tuberculosis and coping strategies in Tajikistan: Coping with TB in Tajikistan. 2012;1(1):9. coping strategies that individuals and households use or say they would use if necessary to ... To address these four main research questions, a two-prong strategy of qualitative testing consisting of cognitive interviews and focus groups was used. On the days where greater physical activity was possible, treats were often external to the home and involved activities which had been enjoyed pre-diagnosis such as shopping, visiting friends or playing with grandchildren. In addition, a number of health staff noted that in specialist TB hospitals in Kunming it was not uncommon for TB tests for rural patients to be repeated due to a lack of trust in the reliability of tests conducted in their home counties, which contributed to further costs and delays for patients coming from outside Kunming. Access to such services can, however, be problematic due to availability issues[7], and many healthcare professionals are known to focus on physical rather than psychological symptoms[8, 9]. In addition, codes and preliminary findings were shared and discussed at three dedicated meetings with health professionals in Kunming, which provided further feedback on our interpretation of the data and allowed for any necessary fine-tuning of the analysis. 2008;12(5):538–47. Both groups of patients independently identified the idea of a mentor as important: I really like the idea of having a mentor, perhaps someone who has survived cancer who knows, rather than a professional as it were having…you know, recruit from people who have experience, gone through exactly this. He even went bankrupt. Methods A qualitative design was used. However, missing from the literature is a consideration of the social context of unemployed persons and the ways in which persons cope with their unemployment. Dive into the research topics of 'Coping with intimate partner violence: Qualitative findings from the study of dynamics of husband to wife abuse'. People with advanced cancer were recruited from outpatient clinics (lung, breast, prostate, colorectal and palliative care) within two tertiary cancer centres in the North West of England. 26 people with advanced (stage 3–4) breast, prostate, lung or colorectal cancer, or in receipt of palliative care, and 24 paired nominated informal/family carers. We designed published qualitative studies, and only a few quantitative studies have investigated aid worker coping strategies. T2 - A qualitative study. The interviews were recorded using a Google Scholar. 2014;383(9934):2057–64. Global Tuberculosis Control 2009. Hence, it is important to understand how to age successfully. Tuberc Res Treat. Coping mechanisms-such as patients’ reliance on family members and healthcare workers provision of personal contributions to the poorest individuals-are helpful, but often unsustainable and insufficient, raising new challenges. In particular those participating in the focus groups to discuss ways of promoting effective coping strategies were primarily aged between 50 and 60, and they may have particular ways of promoting coping strategies which were over emphasised in the research. AU - McCann, Terence V. AU - Lubman, Dan I. PY - 2018/1. Global Strategy and Targets for Tuberculosis Prevention, Care and Control after 2015. People were aware this was a reliance that may not previously have existed and of the balance required of receiving required support but not over burdening people: Somebody’s driving me [to clinic appointments], at the moment…. P3: …you feel about yourself and what’s going on. Article Found insideBeing in the script of menopause: Mapping the complexities of coping strategies. Qualitative Health Research, 19, 30–41. KayserJones, J. (2002). Journal of Ethnographic & Qualitative Research, v5 n1 p12-30 2010 This study examines coping behaviors and felt experiences of homeless adults in Michigan's Upper Peninsula. For individuals, the movement between perceptions of negative and positive coping has an identifiable pattern. From a policy perspective, our work confirms that China’s subsidised TB and-previously subsidised - MDR-TB treatment are perceived to be necessary, but insufficient for ensuring continued access to relevant care for patients [10–12, 16]. 2013;8(11):e82503. Initial struggles to cope with the diagnosis were embedded in stories of shock, dismay, disbelief, fear of the unknown and grief which had, by the time of the interview, been replaced by presentations of acceptance and pragmatic descriptions of coping although the level of acceptance and recognition of coping strategies were usually greater when more time had elapsed since diagnosis. Researchers used a qualitative descriptive method using semistructured interviews to collect data. Methods The public’s knowledge of TB prevention and control in Yunnan has been reported as lower than national averages and that patients’ knowledge of TB was a significant factor in influencing treatment outcomes [6, 50]. To facilitate the visibility of longitudinal factors in analysis data codes were colour coded to flag the point at which they emerged in the data collection process. Cambanis A, Yassin MA, Ramsay A, Bertel Squire S, Arbide I, Cuevas LE. Focused group discussions are used to collect qualitative data from the participants which are residents of Marilao in the province of Bulacan. Both within and between interviews participants clearly indicated that their initial response to diagnosis and their ways of ‘dealing with it’ had changed over time. Permission was only granted for the use of suitably anonymised data extracts, as are used in this publication. Most patients coped by selling their assets or borrowing money from family members, which often strained relationships. participants with lung cancer were offered interviews towards the minimum protocol timescale of 4 weeks), and life events and clinical milestones such as consultations or diagnostic results identified by participants. From a provider perspective, staff were well aware that helping patients beyond their remit was of limited use and that more systemic solutions would have to be found. And that’s what I do. All participants were requested to provide written informed consent. Participants discussed similar approaches to coping and maintaining wellbeing, despite different resources being available to them. the methods of religious coping they called upon most frequently to alleviate some of these stressors. microaggressions, and coping strategies of professional Black women in corporate America are discussed. Latent tuberculosis infection in rural China: baseline results of a population-based, multicentre, prospective cohort study. Tanimura T, Jaramillo E, Weil D, Raviglione M, Lönnroth K. Financial burden for tuberculosis patients in low- and middle-income countries: a systematic review. Interview analysis focused on patients and carers as individuals and pairs, exploring multiple dimensions of their coping experiences. Our study shows that barriers to care and adverse impacts of disease may be exacerbated for rural patients, and especially those infected with MDR-TB, as critical health services (including, medication and diagnostic tests) are concentrated in major cities and costs of care can be catastrophic for some households. Munro SA, Lewin SA, Smith HJ, Engel ME, Fretheim A, Volmink J. I just respect that. Qiu S, Pan H, Zhang S, Peng X, Zheng X, Xu G, Wang M, Wang J, Lu H. Is Tuberculosis Treatment Really Free in China? 1 0 obj
2005;16(2):189–204. They were equally clear about the limitations of other ways of sharing information such as written information, because leaflets or information on websites could be impersonal and ‘scary’: P4: No, I didn’t like the leaflets because I’ve got bowel cancer and when I looked at the bowel cancer for stage four, they had a whole bunch of case studies of people and all of them were terminal. This meant that patients, especially those coming from rural areas, were presented with considerable financial challenges regardless of actual coverage levels. I don't argue with him now, I just let him do it…. At present, the current situation of stress on breast cancer survivors (BCSs) in China has not been fully understood. This study has a number of strengths: it is a large, longitudinal qualitative study, where detailed data analysis is possible through drawing from a rich data base of in-depth interviews pertinent to whether, how, and what coping strategies were developed. Running head: BURNOUT AND COPING AND STRESS MANAGEMENT 7 Article Three Research design. Keywords . The aim of the study was to examine the relation between personality factors and self-reported health status, and the coping strategy that employees had used in a self-chosen stressful situation at work. A total of 122 employees (84%) returned completed Aid workers experience elevated levels of stress which has a detrimental impact on individuals, organisations and the aid sector; however, there is limited qualitative research capturing aid worker’s views on stressors and coping strategies. Lin X, Chongsuvivatwong V, Lin L, Geater A, Lijuan R. Dose-response relationship between treatment delay of smear-positive tuberculosis patients and intra-household transmission: a cross-sectional study. This is not reflected in the current models of psychological support provided by the NHS which focuses primarily on the level of expertise of the health care practitioner supporting the patient with psychological problems[69]. So I called the doctors and asked whether I could take the injections by myself, because the previous practice was very bad for me. For some, the ‘treat’ was for the other in the dyad and generated feelings of wellbeing either from the act of giving or from receiving something, particularly if unexpected. Objective This study aimed to explore the mental well-being of Syrian refugees and identify their coping mechanisms and pathways towards integration into new communities. Restrepo BI. This was particularly true for MDR-TB patients whose known length of infection and course of treatment was considerably longer than those with TB. For others, there was little history of similarly stressful, uncertain or difficult situations and knowledge was then gained from either current personal experience, health professionals or health literature provided through the clinic or other sources such as the internet. Together they form a unique fingerprint. World Health Organization. Kemp JR, Mann G, Simwaka BN, Salaniponi FM, Squire SB. 2014;43(6):1763–75. However, although most participants reported helpful conversations with other patients/carers during clinic visits many of the strategies that participants employed had emerged from ‘learning the hard way’. Focus group discussions were digitally audio recorded and transcribed verbatim. Terms and Conditions, PLOS ONE promises fair, rigorous peer review, Costs of accessing care were a major burden on patients, and could result in friction between some healthcare staff and patients. Coding was conducted on FGD transcripts and a combination of field-notes and interview transcripts. The pattern repeats over time, ‘looping’ as individuals not only move between positive and negative emotions but revert to an earlier point as they take time to reflect and recover or lose wellbeing. So while I go, my husband is in the house looking after the farm. Cookies policy all in school, we found growth under pressure, which often enable psychological wellbeing to be.... Existing quantitative stress assessment instruments for college students was described by a native! And multidrug-resistant TB ( MDR-TB ) burden in the professionals providing care, data and... The end of it 22 ] by focus groups that door is shut and I,! Seeking and access to and affordability of healthcare for TB the successful application Growing is! 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